Progress is much slower than we would like, but we did get an encouraging bit of news that falls in-line with what we are seeing. Steve forwarded the following email from a gentleman who went to Israel for similar stem cell treatments: "We have to give these cells the time they need to do their magic. I met a doctor who had observed many MS and ALS patients recovery post SCT and made a very interesting observation : areas closest to the center of the body recover first, and then the lower extremeties. So, trunk strength, bladder control, and hip flexion will improve before any significant change in walking or foot drop. This has been my experience being 5 months post SCT."
It is obvious that progress is going to be very slow. The good news is that Steve is definitely not getting any worse, which has been the case over the last 20 years. Maybe we have hit bottom and made the turn toward improvement. The above email was confirmation for us that we have made the right decision.
The other good news is that everyone in the family is well and we are having an absolutely gorgeous fall. The weather is perfect, sunny days, mid-70's, with a cool breeze. Life is good!
Saturday, October 17, 2009
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