Personally, I just think any recovery is going to take a very, very long time. Steve has had MS for 23 years now and it has been a very long, slow decline. Even if it takes that much more time, going the other direction, it will be worth it. To look at Steve, he does not seem any better, other than maybe his coloring. It certainly seems that he is not getting worse, although any type of exertion really does wipe him out. Right now, it is very hard to gauge, because we are all getting over a bad stomach virus. Anytime Steve gets anything like that, it takes him a while to get over it. He bought a recumbent, stationary bike about six weeks ago. However, he hasn’t ridden in more than a week, due to getting over the stomach bug, as well as busy schedules with the kids.
He did recently read a post from a guy named Shah, on the stem cell section of the MS Board. He went to Israel and has posted a great deal on that thread. Shah said that the improvements seem to start in the trunk of the body and then move to the extremities. He also said that it takes time. This would be in-line with what we see with Steve. Very slight improvement overall with bladder function, less twitching in his legs at night, and other things. However, it is also important to know that all of these improvements are very, very, very slight.
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So sorry you all have been so ill. I think of you so often and appreciate the updates. Take care of yourselves and feel better. And, don't underestimate the power of 'not getting any worse' -- that is a huge step! Think of it as stopping a huge, heavy train. It takes an awful long time for it to come to a stop before it can go in reverse. Stopping takes a lot of healing. I'll be praying for more for you all!
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Casey
Thanks Casey! I just haven't been on here much, because of nothing new to report. Day-to-day, not much is different. Hopefully in six months, we will see noticeable change.
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